TMC Pharma Services, the international pharmaceutical development organisation that specialises in innovative treatments for rare diseases, is part of a news-style programme produced by ITN Business to mark this year’s Rare Disease Day (Tuesday 28th February).
The programme, ‘Together Caring for Rare Disease’, has been produced in partnership with Genetic Alliance UK and is presented by journalist Hannah Vaughan Jones. It covers the complexity and life-limiting impact of rare diseases, along with how technology, science, treatment and management can make a difference, and includes interviews with the TMC Pharma team about their work.
A disease is classed as an orphan when it affects fewer than 5 in 10,000 people and it’s estimated that there are between 5,000 and 8,000 orphan diseases worldwide. In 2021, 40% of the medicines approved by the European authorities were to treat orphan diseases.
TMC Pharma, which has been backed by leading private equity investor LDC since 2022, works with more than 300 medical research organisations in over 70 countries across the globe to support the development of orphan drugs that can help people with rare cancers, hereditary or metabolic diseases.
It has a network of more than 1,000 specialist associates who help biotech companies to develop their drugs, with the end goal of improving the prospects of those suffering from an orphan disease.
Julie Matthews, Chief Executive Officer of TMC Pharma, said: “We’re proud to be an official partner of this very timely programme, which not only shines a light on the reality and extreme challenges of being diagnosed with a rare disease, but also the care and support that’s out there.
“In our position as a global leader in the orphan drug development market, we have a part to play in raising awareness to help bring about change for the hundreds of millions of people worldwide living with a rare disease, as well as for their families and carers. The heart-breaking reality for patients with rare diseases is that they feel like they’re neglected. It’s our job to turn that around and try to find the treatments that make their lives better.”
‘Together Caring for Rare Disease’ features key industry and news-style reports along with sponsored editorial profiles, including that from TMC Pharma.
It is available to watch now at https://raredisease.org.uk/careforrare